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Post by veryblessedmom on Dec 29, 2009 12:41:34 GMT -5
Tomorrow, 7-day old Anna Grace will have open heart surgery. Please join us in prayer at 6am, EST as that is when the anesthesiologist will be taking this precious gift from God into his care. Surgery will begin at 7:30 and last for six hours. Pray for supernatural PEACE for her parents, Brian and Tina, during this time..., as they are very weary. They are going to get to hold her for the first time today... PRAISE GOD!! The most updated blog is attached. www.baasheepbaa.blogspot.com
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Post by beckyminor on Dec 29, 2009 12:56:27 GMT -5
Oh my goodness...I couldn't read the whole blog entry...it was killing me! My prayers are definitely with this little girl and her family. May the Lord guide the surgical team and work a miracle through their hands.
And I can't help but add a prayer of thanksgiving for the health of my own children. I can't even imagine what this family is going through. (Not without tearing up, at least!)
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Post by veryblessedmom on Jan 3, 2010 20:25:37 GMT -5
My friends got to hold their baby girl for the first time today. Please keep Tina,Brian an Anna Grace in your prayers tomorrow and the days that follow.
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Post by veryblessedmom on Jan 4, 2010 8:40:15 GMT -5
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Post by veryblessedmom on Jan 4, 2010 16:27:07 GMT -5
Anna Grace on her way back to PCICU. Dr says surgery went well. Pray that swelling will go down quickly so they can close up her chest and also that she can come off of the ventilator soon. Next 48 hours are critical. Prayers are coveted for this precious baby!Baa Baa Blog: Anna Grace - January 4 - Update #5 www.baasheepbaa.blogspot.com1 Chronicles 29:11Yours, O LORD, is the greatness and the power and the glory and the victory and the majesty, for all that is in the heavens and in the earth is yours. Yours is the kingdom, O LORD, and you are exalted as head above all.
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Post by beckyminor on Jan 4, 2010 16:41:43 GMT -5
So glad this precious little one made it out of surgery today...scary that they can't close the incision(s) yet! I pray all goes miraculously well from here.
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Post by veryblessedmom on Jan 4, 2010 19:39:30 GMT -5
Baby Anna Grace's Blog entry (Tina, the mother is having some complications from delivery and is supposed to be on bed rest, but cannot do that fully obviously. Please pray for her too.)
We saw our little girl following surgery. It was shocking to see her with her chest open but we are thankful that the morning's surgery went well. The doctor said that we specifically can pray that she is able to urinate the same amount of fluid that she takes in, this should keep the swelling down and enable them to close her chest sooner.
Brian is heading back up to the hospital & I am going to try to get some rest. Thank you for continuing to pray.
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Post by veryblessedmom on Jan 5, 2010 8:50:54 GMT -5
Anna Grace's swelling has gone down and they are planning to close her up today.
Thank you so much for praying for her and my friend. It has been so hard to watch this, but God has been so good every step of the way.
Please keep praying against infecton and bleeding.
Missy
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Post by Christian Soldier on Jan 5, 2010 11:10:09 GMT -5
God bless and Prayers away! (If a bit delayed)
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Post by veryblessedmom on Jan 6, 2010 22:03:30 GMT -5
Anna Grace - January 6 - Update (Got this email update. Thank you all for praying. He is listening) Spoke with Anna Grace's Cardiologist tonight, Dr Forbus. He said that since Anna Grace is on the lowest ventilator setting that he is going to allow her to do C-PAP Trials tonight. What that means is that they will turn the ventilator on a "standby" mode and allow her to breathe on her own. The vent will remain in & the vent will monitor her levels while she is breathing on her own. If she needs help the vent will automatically kick in & take over for her. Please pray that she "passes" her C-PAP Trials tonight. If she does then Dr Forbus said she can come off the vent tomorrow. That would be truly a miracle for her to come off the vent this quickly - truly, it is not the norm for these babies to come off the vent this quickly.
Also, the cultures taken from her heart yesterday came back NEGATIVE for infection (Praise be to God!!!!!). They will watch the cultures for another 24 hours. If the cultures come back negative again tomorrow then Anna Grace can stop her antibiotics - so please pray for more negative cultures tomorrow. The antibiotics really upset her tummy so being able to stop them will make her that much more comfortable (and her little bottom too).
Dr Forbus also said that they started her IV fluids again today (eletrolytes) and that if things go well they will start her on breast milk through her NG tube tomorrow - not much - just 2 cc's an hour, but introducing food to her is a BIG deal after the Norwood. Also, that much closer to her being able to eat from a bottle.........
So, tonight & tomorrow are going to be BIG hurdles for our little one. Thank you for praying - God is answering and is being so merficul to our little Anna Grace. Thank you Lord, thank you Lord - we are humbeled to be so blessed!
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Post by beckyminor on Jan 6, 2010 22:21:41 GMT -5
Thanks for the update, VBM. Antibiotics are such a killer on a baby's poor digestion (the whole way through... ) I pray they'll be able to make remarkable strides with her recovery.
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Post by Jeff Gerke on Jan 8, 2010 9:39:59 GMT -5
This is all terrific news, vbm. Thank you for the updates. Keep 'em comin'.
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Post by veryblessedmom on Jan 8, 2010 12:26:11 GMT -5
Anna Grace's ventilator has been removed. Lord thank you! Next step to be moved out out the PCICU. this link is a picture of Anna Grace. yfrog.com/4ea69bj
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Post by veryblessedmom on Jan 8, 2010 19:33:34 GMT -5
From anna Grace's Blog Friday, January 8, 2010 ANNA GRACE - January 8 Due to Tina being very tired she has asked me to update the blog for today. So please forgive me in advance for not being as detailed about all the ins and outs of Anna Graces care and condition. This morning between 7am and 8:30am little Anna Grace graduated over the 3rd major hurdle which was getting her ventilator removed. She has been doing wonderful since. All the nurses are coming by and complimenting on how well she is doing. Most babies when they have the vent removed are very agitated but Anna Grace has been awake and very quiet. She has been even doing some goooing and ahhhing like she is saying “thank you Lord for getting that big ol pipe out of my throat.” It is common in most cases as well for the babies to have to go back on the ventilator so please keep this in your prayers. It’s tough not to say to Anna Grace “Good job for being so strong” because that’s what naturally wants to come out. But let’s face it, she did not do anything. The good Lord Jesus Christ did it all. Without Him working towards strengthening my little girl she would not even be here. So I have to be very careful speaking to Anna Grace and making sure she knows it’s the Lord who has given her the strength to rebound so quickly. My heart breaks because there are so many little ones who are struggling. As I’m typing this I have a mom across the room from me who’s little boy just cannot seem to get out of the PCICU. It’s been I think 3 months. Another big thing today is Anna Grace had her catheter removed so she is back to just diapers. The nurses are still in charge of this so it’s cool. I mean she still has a couple of lines going into her belly and its scares me to think about changing a diaper. Anyway, that’s my story and I’m sticking to it. They will be checking later her vocal cords to make sure there was no damage when the ventilator went in or came out. It’s something they do on all babies but still be in prayer about there not being any damage. Also they will be starting her back on breast milk shortly. They will only start with like 2 to 4 cc at a time but will increase as her stomach can tolerate it. It is very common also for heart babies to have issues keeping the milk down. I’m not sure why but Dr. Forbus said it is possible she will have to have some help getting milk into her by having a feeding tube surgically put into her side. Please be in prayer about this as well and that she can feed normally. Anyway, all in all it’s been a very good day except a little boy named Josiah had to be flown back down here to the PCICU from Greenville yesterday. He has been in the PCICU for I think 6 months - Heart breaking. You can read him and their parent’s journey at www.thewilsonheart.blogspot.com Hebrews 12:3 says this: “Consider him who endured from sinners such hostility against himself, so that you may not grow weary or fainthearted.” Thank you Jesus!
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Post by juniperlee on Jan 9, 2010 7:15:27 GMT -5
I just read through this message board. What an amazing journey for one so small. I pray that God will continue to heal Anna Grace.
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